Organizations - Gluten Free in SD

Organizations and Research Groups

Support Groups

The following national organizations offer vital information and support dealing with gluten-free living. Their respective websites include information about celiac disease, dermatitis herpetiformis, diagnosis, product information, newsletters, restaurant cards, and much more. Membership in some of the organizations entitles you to their newsletter (see the Publications section in Resources).

American Celiac Society 973-325-8837 Annette Bentley, President 59 Crystal Avenue West Orange, NJ 07052-3570	Gluten Intolerance Group of North America (GIG) www.gluten.net 15110 10th Ave SW, Suite A Seattle, WA 98166-1820 206.246.6652
Celiac Disease Foundation www.celiac.org 13251 Ventura Boulevard, Suite 1 Studio City, CA 91604 (818) 990-2379 Orange County Celiacs Support Group, Barbara Nielsen, Chairman, 949-644-4966	Raising Our Celiac Kids (R.O.C.K.) www.celiackids.com
Celiac Sprue Association (CSA) / USA, Inc. www.csaceliacs.org P.O. Box31700 Omaha, NE 68131-0700 (402) 558-0600

Research / Advocacy Groups

Center for Celiac Research (CFCR), University of Maryland
www.celiaccenter.org
Alessio Fasano, MD, Medical Director
CFCR was established in 1996. This mulitdisciplinary team conducts scientific and clinical research, including the recent landmark celiac disease prevalence study. The goal of the CFCR is to increase awareness of celiac disease in order to provide better care, better quality of life, and more adequate support for the celiac disease community.

Celiac Disease Center at Columbia University
www.celiacdiseasecenter.columbia.edu
Peter H.R. Green, MD, Director
This center is dedicated to patient care, physician and patient education, as well as research. The website is an excellent information resource.

Celiac Disease Clinic at Mayo Clinic
Joseph Murray, MD, Medical Director
507-284-2467
/www.mayoclinic.org/celiac-disease/
This clinic is located at the Mayo Clinic in Rochester, Minnesota.

The University of Chicago Celiac Disease Center
www.CeliacDisease.net , 773-702-7593
Stefano Guandalini, MD, Medical Director
"Our mission is to raise diagnosis rates for celiac disease and meet the critical needs of people with the condition, through education, research, and advocacy." The website is a great source of information in the Celiac Disease Fact Sheets section.

Celiac Sprue Clinic, Stanford Hospital & Clinics
Gail Pyle, MD
650-723-4000
www.stanfordhospital.com/clinicsmedServices/clinics/gastroenterology/celiacSprue

Center for Celiac Disease
Beth Israel Deaconess Medical Center
Harvard Medical School
Celiac Center at Beth Israel Deaconess Medical Center, www.bidmc.harvard.edu/YourHealth/ConditionsAZ/CeliacdiseaseCeliacsprue

Wm K. Warren Medical Research Center for Celiac Disease
http://CeliacCenter.ucsd.edu
858-822-1022
La Jolla Campus of UCSD
Martin F. Kagnoff, MD, Director
The Warren Medical Research Center for Celiac Disease opened January, 2006. It aims to conduct state-of-the-art research in the area of Celiac Disease. In addition, the research center works in conjunction with an Adult and a Pediatric Celiac Clinic, both located in San Diego. These clinics are now seeing patients, and will eventually provide comprehensive medical care to individuals and families affected by Celiac Disease. Call 858-822-1022 to make appointments at either clinic.

Advocacy Groups/Foundations

American Celiac Disease Alliance (ACDA)
(formerly the American Celiac Task Force)
www.AmericanCeliac.org
ACDA's goal is to be a federation of celiac organizations to advance education and advocate for individuals with celiac disease. The board is comprised of physicians, support groups, and industry representatives. Andrea Levario, J.D. is currently the Executive Director of ACDA.

National Foundation for Celiac Awareness (NFCA)
www.celiacawareness.org
The NFCA is a nonprofit organization dedicated to finding a cure for Celiac Disease. It is "afffiliated with the leading researchers in the U.S. who are working toward this goal." It is a United Way Agency. The organization's website is full of good information about current CD news, current research, and CD information.